Yesterday I noticed a new spot on the inside of my upper arm. It's rough, pinkish in color and wrinkly. I told my wife about it and she made me put lotion on it. It stung really bad (which is normal) but it didn't go away (which is not normal). We washed the lotion off and I put a super soft long sleeve shirt on and am doing better. I know that my stress level is through the roof right now (as it always is towards the end of the school year). This has caused my regular spot on my lower back to get darker (and spread to 3 separate spots) but now that it has gone to my arm, it has me more concerned.
I need to go see the doctor again but I'm really resistant due to my previous bad experience at Anschutz Cancer Center. Given that they're the only option for CTCL clinic in Colorado, I don't have much other choice. 😞 It also sucks that I have to take a whole day off work to go.
I guess I'll be setting up an appointment tomorrow.
I was diagnosed a little over 3 months ago and have just finished UVB treatment with great success. I have a follow up appointment booked for June next year unless I have any issues between now and then. I am wondering how you are doing since you last outbreak. Thank you for writing this blog, it has been great to read. So much better than the articles on the web. They are terrifying!
ReplyDeleteThat's great that it only took 3 months to finish up with UVB. Congrats!
DeleteI'm about to start up with UVB again and my doctor wants me to get clear again, then continue one treatment a month most likely for the rest of my life, just to stay clear. I have a really persistent spot that just keeps coming back so this will hopefully keep it under control long term. So I'm still doing pretty well. :-)
Hi I am stage 1B uvb 3 times a week and on Bexaronte 150 mg. I was diagnosed about year and half. it's a silent suffering for those who have it. most people don't understand what we go through
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