Sunday, January 6, 2019

Updates on treatments

I went to see my specialist on Friday and it went well. I've been clear for a couple months now so I'm officially on "maintenance" treatments. It means I get to see the doctor every 6 months instead of every 3 months which is nice. He still wants to do the full body checkup once a year just to make sure I've not developed any skin cancer/moles from the treatment, but this is very unlikely given the low risk from UVB.

He also said that although he wants me to stay on the once a week treatments indefinitely, if I wanted to skip a treatment every once in awhile, he'd be ok with it. This is a huge relief since I have a 10 day trip overseas coming up in March. I knew I'd have to skip a week's treatment but having his approval is nice. It's also good to know that if I'm ever just having a bad day or sick, that I don't need to worry about it.

Another change is that they replaced the lightbulbs in the machine I use for nbUVB which means that the time I spend in the machine is less. Right before they swapped the bulbs out, I was at 2 minutes 30 seconds. Then afterwards, it adjusted to 1 minute 40 seconds. This provides the same dose, it was just a stronger bulb. As time has gone on, I've been increased to 1 minute 50 seconds as the bulbs have worn out. My dosage itself hasn't changed at all since this summer though.

I likely won't have more updates unless anything changes. As always, I welcome any questions so feel free to contact me even if I haven't posted here in awhile.