Tuesday, March 27, 2018

Starting treatments again

My last post was titled "Seeing a new doctor soon" so I suppose I should start with that visit first.  Basically, he went over everything that my previous doctor had sent over, said "yup, you have CTCL", and "yup, you should start up narrowband UVB again". 

So, today (yes, it's taken me 4 months to actually set up a nUVB appointment, don't judge) I went to my first treatment (for this round). 

I've already made a post about what the nUVB experience is like, so I'll focus on the differences this time around. My previous place had you wear goggles and a face shield, this place has flimsy sunglasses and asks you to put sunscreen on your face. They provide the mineral oil which is nice because I had to bring my own each time before. 

The biggest difference was that this place has a fan in the booth so that you get nice cool air circulating around. It never got terribly hot, but was just comfortable. They started me at 53 seconds which is a lot more than my previous place started me, but I'm not quite as fair as I was back then (still classified as a level 1 skin, the palest). 

They also let you see the calendar and write in your own appointments which is nice. 

Afterwards, I have the sensitive, tingly, I'm kinda burned but not really, feeling all over my body. I'm exhausted, hungry, cranky, and worn out. On the drive home I realized that I'm in for another year or two of this feeling which sucks. Then I remembered that compared to most people's "cancer treatments", this is nothing and I need to stop being a big baby. 

I hope everyone is having a great day. Now I'm off to eat, sleep, whine, and lotion.