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Patient & Caregiver Perspectives Needed - Help Patients Gain Access to Treatment
Due to the rarity of many t-cell lymphomas, Lymphoma Canada is looking internationally to help find patients and caregivers who may be able to provide some important and much needed perspectives on t-cell lymphoma. Lymphoma Canada is conducting a survey of peripheral T-cell lymphoma (PTCL) patients and caregivers to appeal to the Canadian governments to provide funding for romidepsin (Istodax) in Canada.
Romidepsin (Istodax) has been approved by the FDA and Canadians are also trying to gain access to this new treatment. You don’t need to live in Canada to complete this survey.
Lymphoma Canada is preparing a submission to the pan-Canadian Oncology Drug Review (pCODR) for: romidepsin (Istodax) for the treatment of patients with relapsed/refractory peripheral T-cell lymphoma (PTCL) who are not eligible for transplant and have received at least one prior systemic therapy.
There are many subtypes of PTCL, such as:
- Anaplastic large-cell lymphoma (ALCL)
- Angioimmunoblastic T-cell lymphoma (AITL)
- Cutaneous T-cell lymphomas (including Mycosis Fungiodes and Sezary syndrome)
- Enteropathy type T-cell lymphoma
- Extranodal NK (natural killer) T-cell lymphoma, Nasal (also referred to as Angiocentric lymphoma)
- Hepatosplenic (Gamma-Delta) T-cell lymphoma
- Nasal NK/T-cell lymphoma involves natural killer (NK) cells
- Peripheral T-cell lymphoma Not Otherwise Specified (PTCL-NOS)
- Subcutaneous panniculitis-like T-cell lymphoma
By responding to our survey, you will provide us with the patient and caregiver input required for the submission. pCODR uses this information in the submissions to help them make recommendations to the provinces and territories regarding funding for new cancer drugs.
BY COMPLETING THIS SURVEY, YOU ARE A PART OF THE PROCESS THAT MAY HELP PATIENTS GAIN ACCESS TO THIS NEW TREATMENT IN CANADA.
You may access the surveys by clicking on the link below:
http://www.lymphoma.ca/post/ptcl-patients-and-caregivers-we-need-your-help
The survey will be open until midnight Pacific Time on Sunday, November 23rd and should take about 10 minutes of your time.
Lymphoma Canada would like to thank you in advance for your contribution and greatly appreciates your participation in this survey.
