I don't have anything new to report, but I wanted to say hi to everyone checking out the site.
There have been quite a few hits on this blog this week. While I hope that everyone finds the site at least a little helpful and hopeful, it makes me sad that the likely reason someone visits my site is that they or someone they love is dealing with Cutaneous T-Cell Lymphoma. This can be particularly hard for the loved ones, not knowing what to expect or how to be supportive. For people with CTCL and their loved ones, the most important thing is to be caring for yourself. Stress has a really negative impact on not only our psychological well being, but our physical well being. Care for yourself so that you are able to care for others.
To those who are newly on this journey, remember that it is a long journey, full of options, opportunities, and hope. I would love to hear about your story, either by comment below, email, or on your own blog. When I was first diagnosed, I had a hard time finding information from the patient's perspective, and most blogs hadn't been updated in more than 5 years. It gave me the feeling of being alone in the journey, which is certainly not the case. So I just wanted to say that I am here, if you have any questions, feel free to ask. You aren't alone in your journey.
