Good news

As a teacher, May is an extremely hectic month. In addition there were a lot of other events, issues, and stressors that happened at the same time. This all culminating in me forgetting to go to treatment for 3 weeks. Despite missing treatments for awhile, my skin was still completely clear. In the 4th week of no treatment, I had an appointment with Dr. Pandya. He said that since I'd been clear while off treatment I can go ahead and discontinue the nbUVB treatments all together. :-D I can't express how happy this made me. He also said I didn't have to come back and see him unless some spots showed up again. So for now I am 100% clear with no evidence of disease or symptoms.  

While the word remission does not get used with CTCL unless a stem cell transplant has been done, it still feels really good to not have any doctor's or treatment appointments in the foreseeable future. Dr. Pandya says about 20% of patients who get clear can stay clear without ever coming back to see him. 

I will likely discontinue posting unless something happens again. So if you're reading this, no news is good news from here on out. 

It has been an emotional journey for me. One I am strangely grateful for. Cancer is the ultimate prioritizor and I am a stronger, less stressed, more zen person than I was before. 

Please feel free to comment or message me with questions. I will still receive them.

I wish everyone the best of luck on their journey.